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Monday, 12 December 2011

A Steroid (Hydrocortisone) Victim wrote to me a few weeks ago

A Steroid (Hydrocortisone) Victim wrote to me a few weeks ago. This is what she wrote (omitting her name and location):

" In August of 2010 I had a brain tumor removed. I am doing well from a neurological standpoint, however the tumor was sitting on my pituitary gland so I developed hypothyroidism and Central Diabetes Insipidis (also known as "water diabetes"). And of course I was put on a steroid- Hydrocortisone- which is what brought me to your website.

I started the hydrocortisone August 26, 2010 and took it until May 5, 2011, so a little over 8 months. And in that time period I gained a total of 153 lbs. I have always been overweight, and then it was like adding the equivalent of an adult to my weight...in a very short time. All of my Dr.s (I had a total of 3- endocrinologist, neurologist, primary physician) all told me the weight would come off once I was off the steroid, and none suggested reducing sodium/salt intake. But the weight did not come off at all. Finally in July, my endocrinologist did suggest reducing my salt intake and also seeing a medical weight loss clinic. From July 22nd to August 25th I lost 10 lbs. But then the Dr. at the clinic cut my calories back and put me on a low calorie diet (1400 to 1600 calories a day) because "I clearly had an increased appetite" (this is the opinion of most drs that I see, due to my size. They usually form this opinion without having asked me what I eat. I do not eat any more than my healthy, 160 lb mother.) I gained the 10 lbs I had lost back, and was becoming so very frustrated with myself, my weight, and with Doctors.

I was so happy when I found your website today. It all made so much sense and it was so nice to read your story and know that someone has gone through what I am going through. Taking an hour to read your website has given me so much more hope than talking to any doctor over the last few months. I am going to try the sodium reduction again, now that I know it can work and I have the confidence that my problem is indeed not my caloric or fat intake, but my salt intake. I am only 21 years old and feel like I am missing out on so much, I use to be so active and outgoing before my surgery, but now I have no ability to do things people my age do or I am embarrassed by my size, but you have given me new hope at a chance to get my old self back.

Thank you for sharing your story and putting so much work into researching and finding the answer."

1 comment:

  1. What a poor young girl to go through all that, nice to think you could help her out in some way x